True Story by Emily

Emily, 20, Bay of Plenty

Pfizer x 2

Myocarditis and Pericarditis. I was mandated to get the jab, and instantly felt faint and chest pain afterwards. Blood tests revealed i had elevated D Dimer (clot markers). I have had to do nothing all summer, I barely remember Christmas. I AM NOW ON OVER 19 DIFFERENT MEDICATIONS A DAY. It has been and a very terrifying and lonely experience. My parents have paid thousands of dollars for my appointments and medications because I am unable to work. To date I have received no financial help from ACC or Ministry of Health.

My name is Emily, and this is my true story.

I HAVE DECIDED TO TELL MY STORY HOPING IT MAY HELP SOMEONE FIND HELP WHO IS ALSO SUFFERING A JAB INJURY….

On Dec 18th i went for my 2nd jab (Pf**er) due to be needing it done by 20/12 due to being mandated for my work. On the 21st Dec i was going Christmas shopping with my mum and got out of the car and felt like i was going to faint i was dizzy and it felt as though someone was sitting in my chest, I couldn’t catch my breath . My mum had to help me into the car, because it felt like I was going to collapse and i could feel everything going black around me. My mum drove me straight to the GP which was closer than the hospital by 30 minutes.

They gave me an ECG and blood tests and sent me home . My blood tests came back with elevated Troponin levels (heart inflammation ). My GP advised i had Myocarditis from the jab. I was referred to a cardiologist.

On the 27/12 my mum rushed me to ED as i was fainting again my pulse was 47 i was very short of breath, my mum had to get the security guard at the hospital to help me into the emergency department because I kept collapsing. More blood tests revealed i had elevated D Dimer (clot markers).

I was given an urgent CT scan but no clots were found. I was once again discharged with no medication not even Panadol.

I have just recently had my cardiologist appointment ( march) I just had some more blood tests and now waiting for an echocardiogram and holter test.

I have been to the Doctor weekly sometimes twice weekly I have been unable to work Doctors orders due to not being able to get my heart rate elevated. I can’t do anything I tried to vacuum out my car the other day I ended up with heart palpitations and swelling and major chest pain. I also can’t make my bed without feeling like I have just ran a marathon.

My Doctor has advised me to do nothing at all, this is very hard for me as I am used to working then going straight to the gym after work etc. If I bend down to pick something up my heart rate shoots up to 130bpm.

I have had to do nothing all summer I barely remember Christmas. I am very grateful for the Doctors at NZDOS for treating me and for the nurses for their phone calls. I would hate to think what the state my health would be without them. They have diagnosed me with Myocarditis and Pericarditis. I have had changes and trials of medication that have caused me to have major setbacks even last week.

I AM NOW ON OVER 19 DIFFERENT MEDICATIONS A DAY and now having to have medication done by a IV drip in my arm. This whole experience has been very challenging not only physically but mentally and emotionally challenging I have felt very isolated over the past few months, because I look reasonably well other than swollen face and hands and feet people including my friends think I am fine and don’t understand what it is like to sit and watch the world go by without being able to do anything.

It has been and a very terrifying and lonely experience. My parents have paid thousands of dollars for my appointments and medications because I am unable to work.

To date I have received no financial help from ACC or Ministry of Health.

I am also very grateful to my family and for friends who have shown me love.

I am also grateful to Shane and Patrice And Anne for holding my poster at the protest in Wellington when I couldn’t stand for myself I can’t thank you guys enough! Also thank you to Lynda Wharton at NZ Health Forum and NZDSOS.

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Informed Consent

From: https://www.healthnavigator.org.nz/health-a-z/i/informed-consent/#Overview

Informed consent is the process of talking about options so you can make an informed decision about your health care. This includes the option of saying no to a treatment or procedure.

Key points:

You have the right to make an informed choice about your health care.

Informed consent is an ongoing process of talking and asking questions between you, your doctor or other healthcare provider and, sometimes, your family/whānau.

To help you decide whether you want a treatment or procedure, your healthcare provider must give you all the information you need to make up your mind.

This includes how the treatment or procedure would help your health condition and what the risks of the treatment are.
There are a few situations where you may be treated without consent, such as in an emergency.

What is informed consent?

Informed consent is the process of talking and asking questions until you have enough information to make a decision about your healthcare options. This includes the option of saying no to having a treatment (such as medicine) or a procedure (such as an operation).

To give informed consent, you must know enough about your condition and the treatment or procedure your doctor or other healthcare provider has suggested. You must have this information given to you in a language and way that you can easily understand. You should have access to an interpreter if you need one.

You also have a right to have someone else with you to provide support while you are talking about your options.

Why is informed consent needed?

You have a right under the law to make an informed choice about your health care. This is one of your rights under the Code of Health and Disability Consumers Rights.

Under the Code, health care may be provided to you only if you make an informed choice and give informed consent. You also have the right to say no to a proposed treatment or procedure, or change your mind about wanting to go ahead with it.

When is informed consent needed?

Your doctor or other healthcare provider must make sure that you have given informed consent for every proposed healthcare service.

When you are going to have a series of similar treatments, eg, dialysis or counselling, your healthcare provider will talk with you before starting the treatment to make sure you agree to it. The consent you give then covers the whole series of treatment.

If the agreed plan changes a lot, a new consent process is needed.

Examples of situations when informed consent is required include:

when you are having surgery (an operation) or other procedure

when you need to have an anaesthetic

if students or observers are going to be there for your treatment

if you take part in research

when any part of your body will be taken out during a procedure

if you will be getting blood or blood products

if you are enrolled in a screening programme

if your doctor wants to prescribe a medicine that has not been approved by Medsafe for use in New Zealand (called unapproved medicines)

if your doctor wants to prescribe a medicine for a different use than that approved of by Medsafe (also called off-label use).

What type of information should I get for informed consent?

Before giving your consent, your doctor or healthcare provider must fully and clearly explain to you:

how this treatment or procedure will help your health condition

what happens during the treatment or procedure

what other options there might be

what you can expect after the treatment or procedure

any risks that may be associated with the treatment or procedure.

You can also ask any questions you want about the treatment or procedure.

What are the different types of consent?

You will need to give either verbal consent or written consent.

Verbal consent means talking about and saying you agree to a particular treatment. This includes when your doctor prescribes an approved medicine for your condition.

Written consent means you need to fill out a form and sign it to show you agree to a particular treatment. This happens for more significant treatments, such as an operation.

How is informed consent gained for children and young people?

For children and young people under the age of 16, consent may be given by a parent, guardian or other person acting in the place of a parent. Depending on the child’s age, they will be involved as much as possible and information will be given to them in a way that they can understand.

A young person aged 16 years and over can consent to their treatment as if they were an adult.

How is informed consent gained for people who are incompetent?

In legal terms, people who cannot decide for themselves whether they want a treatment or not are called ‘incompetent’. This may be because of health conditions such as a brain injury or dementia.

Consent for people who are incompetent may be given by their welfare guardian or a lawyer who has an enduring power of attorney in respect of care and welfare for that person.

What if I didn’t get to give informed consent?

If you have any concerns about not getting a chance to talk about and make an informed decision about a treatment before it was given to you, you can make a complaint. Read more about the Code of Health and Disability Consumers Rights.